The LAL-D aware organization (Support Organization for LAL Deficiency—Advocacy, Care & Expertise) was created to bring LAL Deficiency patients and families together to share experiences, knowledge, and compassion. SOLACE stands for Support Organization for LAL Deficiency—Advocacy, Care & Expertise.
The SOLACE organization was created by parents whose children were diagnosed with Wolman Disease who realized there was a need for a caring support community.
Our mission is to support patients and families affected by LAL Deficiency, a rare and devastating disease, and to educate and raise awareness in the medical community.