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Support Our Organization

The LAL-D aware organization (Support Organization for LAL Deficiency—Advocacy, Care & Expertise) was created to bring LAL Deficiency patients and families together to share experiences, knowledge, and compassion. SOLACE stands for Support Organization for LAL Deficiency—Advocacy, Care & Expertise.

The SOLACE organization was created by parents whose children were diagnosed with Wolman Disease who realized there was a need for a caring support community.

Our mission is to support patients and families affected by LAL Deficiency, a rare and devastating disease, and to educate and raise awareness in the medical community.

We are open to suggestions for anything you want to see on the site. We love new and creative ideas, so please don’t be afraid to speak up…this site is for all of us! Also, let me know if YOU would be interested in being on the board!

The IRS recognizes LAL Solace as a 501(c)(3) not-for-profit organization.